Hello friends,
We hope you are enjoying the holidays with family and loved ones near and far.
Denver has become quiet again with a blanket of beautiful snow this week.
Amy continues to work hard in her many therapy appointments. Her days are very full with occupational therapy, physical therapy, speech therapy, nutritionists, hair washes, rehabilitation doctors, meals, and neurosurgeons. Sleep and privacy for Amy are treasured commodities.
Amy has a long road ahead to rebuild neurological connections and find new ways of cognitively processing and adjusting to her injuries. Amy's brain is young and her body is that of a professional athlete, however the brain damage she has sustained is severe and bi-lateral. We all wish we had a crystal ball. Right now simply sitting up in a wheelchair takes a great deal of effort for Amy, physically and cognitively. With only one side of her body working and the trauma of her accident's effect, we are working day by day to expand Amy's world again. This is her life and we are trying to give her the tools to rebuild it in all the possible direction she may choose.
Her courage continues to give me strength everyday. The arrival of Mary from California again has given us all peace as we watch Amy attempt to communicate with her by producing new words and facial expressions, calmed by her presence and voice. We miss Cheryl and Catherine's friendship and helping hands, but stay up to date on news from home including the birth of a healthy baby girl to Aaron and Grace, childhood friends of Amy, Catherine, and I's.
We are looking forward to our move to an intensive cognitive rehabilitation hospital. Amy will be part of a 9am-5pm therapy program with other brain injury survivors, mostly close to her age, throughout the week, followed by weekends for rest.
Thursday, December 27, 2012
Wednesday, December 19, 2012
mid-december update
Today, for the first time since arriving at denver health hospital in October, Amy left her room in a wheelchair to sit on the fourth floor with a beautiful view of snowy down town Denver.
Over the weekend while childhood friends visited from CA, Amy ate her first full meals sending us running to the grocery store.
The physical therapy team continues to work on the right side of Amy's body which was affected most severely from the accident. Left side brain injury impacts right side physicality and visa-versa.
We met this week with a nurse from the traumatic brain rehabilitation center where Amy will be living for intensive therapy for about 6-8 weeks with family. To our delight Amy is nearly strong enough to make the move and we will do so after the holidays. This is the news we have been waiting for.
Amy's room is decorated with beautiful snow flakes and paper cranes made by friends. I'm looking forward to showing Amy posters for the January dance benefit when they are ready. We wish you all safe snowy holiday travels!
Over the weekend while childhood friends visited from CA, Amy ate her first full meals sending us running to the grocery store.
The physical therapy team continues to work on the right side of Amy's body which was affected most severely from the accident. Left side brain injury impacts right side physicality and visa-versa.
We met this week with a nurse from the traumatic brain rehabilitation center where Amy will be living for intensive therapy for about 6-8 weeks with family. To our delight Amy is nearly strong enough to make the move and we will do so after the holidays. This is the news we have been waiting for.
Amy's room is decorated with beautiful snow flakes and paper cranes made by friends. I'm looking forward to showing Amy posters for the January dance benefit when they are ready. We wish you all safe snowy holiday travels!
Wednesday, December 12, 2012
2nd week of december update
While Amy sleeps I'd like to quickly update you all on her recovery.
No longer in need of either oxygen support or a neck brace, Amy is resting more peacefully. Although still at a high risk for infection, it is wonderful to see Amy exhibiting more physical stability and thus directing more energy to therapy. Her chief neurosurgeon stopped in yesterday and thought her head was healing well.
Amy's days are full: she has a large therapy team working with her and family to rebuild neurological pathways, empower Amy to have choice and expression, and regain practical abilities like being able to fully extend her spine, hold up her own head, and dangle her feet off of the bed. We are working to help relax Amy's right arm more and her left hand has learned the first four letters of the sign language alphabet. Even though Amy may not be able to spell we are hoping to give her as many avenues to work on brain reactivity, the process of learning, and sequencing.
My apologies for the delay in posting photos here of the dance benefit. A computer glitch has set me back.
We are wishing you all a happy winter solstice!
Thursday, December 6, 2012
sucessful surgery
Amy, true to her nature, has made it through her third brain surgery this week. We are all grateful for the care and attentiveness of the medical team working with her.
She will need time to recover and regain strength and responsiveness after this week's hard work at which point she can begin again with her therapy team.
Please check the blog this weekend for some photographs of the moving dance benefit performance put on in Amy's honor a few weeks ago. The expressions of love for Amy keep her and us all strong.
She will need time to recover and regain strength and responsiveness after this week's hard work at which point she can begin again with her therapy team.
Please check the blog this weekend for some photographs of the moving dance benefit performance put on in Amy's honor a few weeks ago. The expressions of love for Amy keep her and us all strong.
Sunday, December 2, 2012
first week of december, medical update
My apologies everyone for the delay in updates.
Amy's progress is less dramatic than in the first weeks after her accident - this is not a bad thing!
We are beginning what will be a 6-18 month process of intensive therapy and re-programing for tasks such as communication and eating among other things. This takes a lot of energy for us all, and mostly from our brave Amy.
Amy's spirits remain good. She smiles, shrugs, gives thumbs ups, and continues to hold hands with determined strength. At the arrival of every card, poster, or picture she lights up and observes each attentively.
Physically Amy remains on a feeding tube as she has to re-learn how to swallow. She is still receiving oxygen support and is on another round of anti-biotics for her current lung infection. It takes a great deal of energy for her body to deal with excess cerebral fluid that is not being properly absorbed and it is likely that a surgery next week will help her deal with this problem for the long term.
Amy's vitals are all stable, however she is highly susceptible to any bug or infection from the outside world with her highly compromised immune system. Please continue to send her your love in emails to be read to her, cards, and pictures of you and loved ones.
Cognitively Amy is about one month into what doctors tell us will be a 6 month process just to reach her new baseline. Our current priorities mostly deal with communication and language. Because Amy was hit on the left side of her brain it is very difficult for her to recall words and even the shape that your mouth makes to pronounce sounds. Amy's speech therapist is working with her and family to access other pathways of potential communication on the right side of her brain such as music and tapping out rhythms. Although, because of an added component of Amy's trake which allows oxygen to be pushed through her vocal cords, she is physically capable of speech it is unlikely that we will hear her voice for a very long time.
When Amy is stable enough, able to participate in three hours of therapy a day, and has had the surgery to return a piece of her skull (which was removed to alleviate pressure from swelling when she first arrived at the hospital,) she will be moved along with family to a live-in brain injury rehabilitation hospital.
I want to emphasize that my sister still looks like herself and behaves like herself. This tragedy has altered her life in significant and undeniable ways which we are all struggling to comprehend, but Amy is still Amy - bright eyes, full head of wavy hair, delicate dancer arms, simply just as beautiful as ever - and loves with the same sincere, tenacious love she has taught us so well over the years.
We sincerely appreciate your continued support, concern, love, and enthusiasm for Amy. We will continue to update this blog, however if you have specific questions or are concerned between updates please email myself (Jess, writer of these blog updates) at j.genevievebailey@gmail.com, instead of Deanne who needs to focus all of her attention on Amy's health and does not want your emails or calls to go unanswered.
Amy's progress is less dramatic than in the first weeks after her accident - this is not a bad thing!
We are beginning what will be a 6-18 month process of intensive therapy and re-programing for tasks such as communication and eating among other things. This takes a lot of energy for us all, and mostly from our brave Amy.
Amy's spirits remain good. She smiles, shrugs, gives thumbs ups, and continues to hold hands with determined strength. At the arrival of every card, poster, or picture she lights up and observes each attentively.
Physically Amy remains on a feeding tube as she has to re-learn how to swallow. She is still receiving oxygen support and is on another round of anti-biotics for her current lung infection. It takes a great deal of energy for her body to deal with excess cerebral fluid that is not being properly absorbed and it is likely that a surgery next week will help her deal with this problem for the long term.
Amy's vitals are all stable, however she is highly susceptible to any bug or infection from the outside world with her highly compromised immune system. Please continue to send her your love in emails to be read to her, cards, and pictures of you and loved ones.
Cognitively Amy is about one month into what doctors tell us will be a 6 month process just to reach her new baseline. Our current priorities mostly deal with communication and language. Because Amy was hit on the left side of her brain it is very difficult for her to recall words and even the shape that your mouth makes to pronounce sounds. Amy's speech therapist is working with her and family to access other pathways of potential communication on the right side of her brain such as music and tapping out rhythms. Although, because of an added component of Amy's trake which allows oxygen to be pushed through her vocal cords, she is physically capable of speech it is unlikely that we will hear her voice for a very long time.
When Amy is stable enough, able to participate in three hours of therapy a day, and has had the surgery to return a piece of her skull (which was removed to alleviate pressure from swelling when she first arrived at the hospital,) she will be moved along with family to a live-in brain injury rehabilitation hospital.
I want to emphasize that my sister still looks like herself and behaves like herself. This tragedy has altered her life in significant and undeniable ways which we are all struggling to comprehend, but Amy is still Amy - bright eyes, full head of wavy hair, delicate dancer arms, simply just as beautiful as ever - and loves with the same sincere, tenacious love she has taught us so well over the years.
We sincerely appreciate your continued support, concern, love, and enthusiasm for Amy. We will continue to update this blog, however if you have specific questions or are concerned between updates please email myself (Jess, writer of these blog updates) at j.genevievebailey@gmail.com, instead of Deanne who needs to focus all of her attention on Amy's health and does not want your emails or calls to go unanswered.
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